“A bill to provide consumers with the right to delete their genomic data, and for other purposes.”
No CRS summary available for this bill.
This section establishes privacy rights for consumers of direct-to-consumer genomic testing companies (i.e., firms providing genetic testing services directly to individuals), requiring such companies to offer mechanisms for consumers to access their genomic data, delete their accounts and associated data, and request destruction of biological samples, with fulfillment and notification within 30 days of requests. Companies must provide clear notices of these rights and deidentified data sharing for research, plus advance notice of at least 30 days prior to any company acquisition identifying the buyer and reiterating consumer rights; exceptions apply for data subject to warrants, subpoenas, court orders, or other legal retention requirements. This section treats violations as unfair or deceptive acts or practices under section 18(a)(1)(B) of the Federal Trade Commission Act (15 U.S.C. 57a(a)(1)(B)), enforceable by the Federal Trade Commission using its full authorities, and directs the Commission to issue any necessary implementing rules within one year of enactment.